Julianna Snow is just five years old, but has made a very brave decision — to die where she feels must comfortable, at home. The sweet little girl is sadly dying from Charcot-Marie-Tooth disease, so when her parents asked her if she wanted to go to the hospital for the remainder of her life, she choose ‘heaven’ instead.
Julianna Snow, 5, is dying from the incurable disease, so her parents asked her if she wanted to go to the hospital to continue the grueling treatments or to stay home. She has chosen to stay home, and live out the remainder of her days surrounded by the comforts of her own things, before leaving this earth to go to “heaven.” So heartbreaking.
Julianna’s parents, Michelle Moon and Steve Snow had to have an extremely difficult conversation with their baby girl, according to CNN. They had to carefully explain to her that she’s dying and that they won’t be in heaven when she arrives there, and neither will her big brother, Alex. Julianna is suffering from spinal muscular atrophy kills many patients before age two. She could live a bit longer, but it would mean more painful treatments, more hospital visits. And that is NOT what she wants.
Julianna is currently stable at the moment, but any little germ that invades her tiny little body, could be the one that kills her. Her parents have decided to let her choose her end-of-life wishes. Julianna picked a magical place that her loving parents have described to her, where she can run, jump, play and eat — “heaven”. The young girl wants to die at home instead of going to the hospital for treatment, and her parents are devastated, but will be allowing her to die on her own terms.
Her mother uploaded a piece of their heartbreaking end-of-life conversation on her blog. You can read all about this amazing family at their blog here.
M: Julianna, if you get sick again, do you want to go to the hospital again or stay home?
J: Not the hospital
M: Even if that means that you will go to heaven if you stay home?
M: And you know that mommy and daddy won’t come with you right away? You’ll go by yourself first.
J: Don’t worry. God will take care of me.
M: And if you go to the hospital, it may help you get better and let you come home again and spend more time with us. I need to make sure that you understand that. Hospital may let you have more time with mommy and daddy.
J: I understand.
M: (crying) – I’m sorry, Julianna. I know you don’t like it when I cry. It’s just that I will miss you so much.
J: That’s OK. God will take care of me. He’s in my heart.
— Brittany King