This is so devastating. Austin Carlile, the lead singer of Of Mice & Men, went into a detailed Twitter tirade about what it’s like to suffer from Marfan syndrome, and it’s absolutely breaking our hearts. See the tweets here.
Austin Carlile, 29, has been open about his battle with Marfan syndrome, but it wasn’t until he posted a series of tweets on Nov. 28 that fans were really able to see the difficult illness he’s been dealing with.
“FYI you don’t “get better” w/ Marfans. You GET BY,” he wrote. “I’ve had foot, ear, rib, head, hip, back & heart surgeries just so I can function/live. all of you saying I should hurry up & get better what’s taking so long. I’ll never be better. you happy? I live EACH DAY as it comes. each day is a battle. Marfan Syndrome is a fibrostic connective tissue disorder, that means it affects your ENTIRE BODY, and IT. IS. PAINFUL. I don’t cry on Twitter on all the bad days. I suck it up & keep pushing on. The rare good days?!…I CHERISH those more than you could ever understand. & I wouldn’t wish it upon anyone. This is why I have such a heart for those hurting, mentally OR physically, because I. AM. TOO.”
Back in October, Austin’s band, Of Mice & Men, was forced to cancel its European tour when he was admitted to Stanford University Hospital to be treated by specialists. Now, the singer’s condition is still so poor that the group has also had to drop out of opening for A Day To Remember in future shows.
Marfan Syndrome is a very rare disease, with less than 200,000 cases diagnosed each year. The genetic disorder affects people differently, and although many of those diagnosed can have a normal life expectancy, they’re constantly reminded of their illness. As Austin pointed out, there is no cure.
HollywoodLifers, leave your best wishes for Austin in the comments section below.