Hearing loss, limited vision, and countless tests and surgeries to cure an undiagnosed disease. After a lifetime of battles, 4-year-old Cole will only have a few years left. His parents, Hanna and Chris, have decided to seize every precious remaining moment with a bucket list.
Doctors recently dealt the heartbreaking blow to Cole‘s parents, Hanna and Chris Rapini, that their son will only live for a couple more years, as the grey matter in his brain starts to deteriorate. Not letting the sadness take over, the parents were inspired by Avery’s bucket list and created an 81-item long checklist and blog to chronicle every moment spent.
The list includes things we might take granted like going to the circus, eating a hot fudge sundae, even lying on a blanket and looking at the stars. The family is ticking off the boxes as they go along, posting the pictures of their adventures. On their website, they write, “we have decided that we have a lot of fun things to do to make up for the lack there of in the last 4 years.”
Doctors have been stumped with Cole’s degenerative medical condition that has caused him to suffer from developmental delays and impaired vision and hearing. For now, no answer have been given to the family, but they hope their story helps other parents whose children are in the same situation or those who may have the same symptoms as Cole.
Isn’t this story so touching, HollyMoms? Please watch the touching video below:
– Lorraine Chow
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