After touching the hearts of many with her brief life, Baby Avery died from pulmonary complications due to spinal muscular atrophy, the genetic disease with which she was born. We hope her legacy brings more attention to this rare disorder.
Avery Lynn Canahuati, or the “Bucket List Baby,” died today, May 1, at just five-months old.
Baby Avery was born with type 1 spinal muscular atrophy (SMA), an incurable genetic disorder. Remarkably, instead of keeping the heart-wrenching diagnosis private, Avery’s parents, Michael and Laura Canahuati decided to spread awareness about SMA through their touching blog Avery’s Bucket List.
In the blog, the Texas couple chronicled every moment their family shared. Written by her parents in Avery’s voice, it crossed off items such as Avery’s first Easter, a trip to college, a first kiss, and a tea party. The blog went viral with 2.4 million page views.
However, after a five-month struggle, Avery succumbed to the disease. “Avery’s passing this quickly came as a complete shock to all of us, as she had just been given a thumbs up at her last doctor’s appointment only three days ago,” her father wrote in a post today.
Michael wrote that Avery’s lungs collapsed and she went into cardiac arrest. He performed CPR and brought her back to life but she died shortly after arriving at the hospital.
“While we were aware of the severity of her diagnosis, we never lost hope for Avery and even in her passing, we still have hope for our daughter and all of her friends,” Michael wrote.
Avery lives on in our hearts. We’re wishing the family strength during this emotional time!
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