The Heartbreak Of Jack Ives — The Tallest Five-Year-Old In (Possibly) The World!

Mon, April 18, 2011 4:54pm EST by 5 Comments

Would YOU worry if your child was already 4’2″ and growing taller by the day?

Jack Ives may have be only five years old, but he’s already England’s tallest youngster — and he suffers due to an exceedingly rare disease!

Already towering over his classmates, Jack is 4’2″ and could grow to be as tall as 7’5″! He suffers from Beckwith-Wiedemann syndrome, an exceedingly rare disease which makes him grow abnormally large extraordinarily quickly. Besides appearing big, Jack also has faced several health issues, including breathing and eating complications due to his oversized tongue, the Daily Mail reports.

“We realized something was wrong because of Jack’s weight when he was born and we were stunned when doctors told us he had a rare condition for which there is no cure,” his mother Hayley says. “We had never heard of the syndrome, no one in our families suffers from it and none of our other children have the condition. Jack spent the first 12 months of his life in hospital, mainly in intensive care.”

Jack has had to have 15 operations to try and regulate his body due to the growth, and his family is raising money to have him be examined by the same doctor who helped to first identify the disease.

We hope Jack’s able to find easier ways to cope by meeting with more doctors!

– William Earl


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Posted at 1:32 PM on October 14, 2014  

This article is misleading, children with this syndrome typically grow really fast until about 8 and then the growth goes to normal. My daughter is 50 inches tall and weighs 78 lbs at 4 years 4 months old, she also has Bws. She is exspected to be average height as an adult.

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Posted at 3:52 PM on May 17, 2013  

My son( turned 5 march 28) is 4’2″ and my daughter(who will be 3 in september 4) is 3’2″. I am5’9″ and their dad is 5’11” and i am no way worried about him i was always tall for my age wad the tallest by almost a foot of my peers all the way to mid- high school.

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veronica pena

Posted at 4:16 PM on May 22, 2012  

ii am concerned because my five year old stands 4foot 5inches tall and is growing each week she wears a size 5 shoe in womens. please contact me to tell me what i should be testing her for. (323) 5221274 USA i live in california

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Posted at 7:12 PM on May 20, 2011  

My 2 1/2 year old grandson is 4 feet tall.

His mom is 5’10” and his dad is 6’6″.
It was estimated that he will grow to be over 7′ tall.

His 2 younger brothers are 1 1/2 years and 10 days.
They are of above average size too.

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Deborah Holland

Posted at 10:18 AM on May 6, 2011  

Just an observation BWS is a syndrome and NOT a disease, as some one who has BWS it is this small difference which make life harder for those of us with the syndrome and those coming face to face with it for the first time.

A disease you can catch. A syndrome (BWS) you cant as it is driven by genestics. It is very frightening for a new parent who has just had a child to be faced with the word DISEASE when that is NOT the case.

So please it would be much appreciated by the few of us with BWS if you can remove the word disease from this artical.

Thank you


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