Girl Born Without A Face — Update On 8-Year-Old Juliana Wetmore

Mon, April 4, 2011 10:08am EDT by 356 Comments 25,657 Article Views

Courtesy of JulianaWetmore.net

You might recognize Juliana’s story from her Discovery Health Channel documentary. And now, there’s some good news about her progress.

When we first saw Discovery Health Channel‘s documentary on the little girl now known worldwide as the “Girl Born Without A Face,” we were extremely touched and curious about her medical progress. And now, Juliana Wetmore, 8, who suffers from a severe case of Treacher Collins Syndrome — an hereditary disease that causes defects of the face — has some good hope for her future.

Although Juliana has been through countless numbers of surgeries, since she was born in March of 2003 missing 30-40% of the bones in her face, she recently underwent a “big deal” surgery in February that involved doctors taking rib bone and beginning to form cheek bones with it.

“It wasn’t easy for her, as her face swelled to the extent that she couldn’t open her eyes,” her nurse, Jeanne, wrote on Juliana’s webiste. “Even so, she didn’t want to lay around in a hospital bed, so she was home on her third post-op day.”

And although the surgery didn’t change Juliana’s appearance much, it is the first step in the process to give her cheekbones.

“Even though Juliana doesn’t look very different, she apparently feels different,” Jeanne wrote. “She can feel firmness now where there wasn’t any before. She puts her fingers beneath her eyes and says “I love my new cheeks”! So amazing!

Juliana is picutred above with her adopted sister, Danica, who also has Treacher Collins Syndrome.

We are truly affected by her story and can only hope her surgical progress goes well. She is a strong little girl who has a lot of fight with her.

–Leigh Blickley
Bizarre Medical Condition Causes New Moms To FORGET They’ve Given Birth!

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Kani

Posted at 6:42 PM on July 1, 2012  

Dear Juliana Wetmore,
You are the most beautiful girl in the world.
You’re a smart, intelligent and sweet girl.
Your family should (probably is) thankful to have you in their lives. People like you desire life most.
Know and before (surgery) you’re being a wonderful clever and living angle.

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carin

Posted at 6:09 PM on July 1, 2012  

Unbelievable…..
The only honest thing to do is to be quiet en bow my head.
She is soooo brave, and so lucky with her parents ans sisters.

I will keep following her.

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Jennifer

Posted at 6:09 PM on July 1, 2012  

@ Tim you’re ugly at least in the inside, so you’re not beautiful. It suchs a shame that people can’t accept people, who are diffrent. :(

@ The family
I wish you strenght, happiness, hope and peace.

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Gem UK

Posted at 4:35 PM on June 29, 2012  

Tim don’t worry. You are ugly and insensitive, Juliana is an 8 year old child. Having a child born disadvantaged with a disability could happen to anyone, you should be ashamed of yourself for posting that disgusting comment and hope that Karma doesn’t find you.

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tim

Posted at 8:57 PM on June 27, 2012  

if this is beautiful I’d rather be ugly.

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amber

Posted at 11:55 AM on July 4, 2012  

@ TIM you are ugly dont worry i just saw you and yep im in pure disgust~!

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Jeff

Posted at 3:10 AM on June 27, 2012  

Dear Julianna,
At the moment I was feeling sorry for myself over simple issues, but somehow I found myself viewing images of you and videos. I was so touched at the amount of love your family has for you I found myself crying (and I’m a 22yr gym rat) you deserve every bit of happiness you get! And I LOVE YOUR NEW CHEEKS TOO! ;_; if your ever in St. Louis send me an email i’ll take you to the Botanical Gardens.

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Judith broughton

Posted at 7:25 AM on June 22, 2012  

Dear Julianna and her family,, I have been following your story
On and off from the beginning. I love and admire you all, but
Especially Julianna. She reminds me of my daughter, Kathryn as a child. Such excitement and true joy,, embracing each new day and
What it will bring. Anything Julianna does is made better and
More worthwhile because of the love and joy she shows in all
She does. I’vd loved you from the start and wish I could hold
You and hug you. Just know that I and countless others see
Jesus in you. You are a gift from God and i feel lucky to realize it.
MY love and best wishes to you and your wonderful family. A mom

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Aaron

Posted at 10:42 PM on June 18, 2012  

BECAUSE OUR GOD IS A LOVING GOD RIGHT GUYS?

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Simone

Posted at 6:04 PM on June 18, 2012  

This is not her sister in the picture.

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me

Posted at 6:22 PM on July 1, 2012  

her adopted sister. she has 2 sisters now

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brian

Posted at 1:58 PM on June 17, 2012  

god would i love to snap a rat trap on that disgusting looking tongue of hers

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Madeline

Posted at 1:20 PM on July 5, 2012  

What is the matter with u…if u have nothing nice to say then don’t even say anything at all

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Diane Morgan

Posted at 12:21 AM on June 17, 2012  

Precious beautiful little girl, I wish you much love and happiness and God’s blessings for a full happy life.

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Nel

Posted at 9:22 AM on June 16, 2012  

This is about love, courage, and patience. Her parents are as beautiful as Juliana. God bless.

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rose

Posted at 1:14 PM on June 7, 2012  

its a real heart touching story. as the parents of the little girl they know she is just like any other little girl its just horrible that people are so judgemental…. she is beautiful :) and on the inside she is probibly a remarkable sweet caring little girl… she doesnt deserve to go through life feeling like she is an outcast… she is so lucky to have such great parents that love her and take care of her and they are trying to help her… god bless u guys and i realy hope everything goes as planned for u you guys are wounderful people and she is lucky to have parents like u :)

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Ariel

Posted at 8:11 AM on June 7, 2012  

Such a sad story even though she is BEAUTIFUL!

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Amber

Posted at 4:14 AM on June 4, 2012  

I think Julianna is precious and an inspiration. I am thankful for the things in my life that I took for grantite, but also think she is a very sweet capable little girl. I truely believe she was meant to live and inspire here on earth.

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Ali

Posted at 9:59 PM on June 3, 2012  

@Mark – there is a God and Thank God it’s not you. You are disgusting. You will never know who Juliana will grow up to be and the impact she will make on the world. Imagine, helping others with no judgment. Oh, sorry, you can’t….

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Ali

Posted at 10:01 PM on June 3, 2012  

sorry that is directed to Kathy not Mark, my mistake!!!

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to ali

Posted at 1:37 PM on June 7, 2012  

ALI you are an amazing women :) im so glad that people are sticking up for this family like they should be… it is there decision as to what to do with there kids KATHY and if you werent so concided and narrow minded u would know that ur kids are probly worse off then juliana and here sister because they were raised by u thats just one more judgemental person to deal with in this world….

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10 year old girl

Posted at 8:10 PM on June 3, 2012  

I hope that Juliana gets better and recovers I think ur story was very touching Iand I also feel so bad for her

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Owen

Posted at 12:33 PM on June 3, 2012  

Iamazing she looks brill
I was born with facial disfigurement had my face built up
I been going to hospital all my life am 36 now am happy what docs did for me

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nope

Posted at 2:34 PM on June 1, 2012  

whatever happened to julliana’s older sister?

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MG

Posted at 8:12 PM on June 4, 2012  

She’s still there with her family.

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Tony B

Posted at 3:54 PM on May 30, 2012  

Right now she is just a little girl wanting to do little girl things. Just hope Mom and Dad will always be there for her even as an adult. When she gets older or becomes an adult maybe later on medical science will give her a beautiful face and a chance for a normal life. I pray for that little girl and her parents for that day to happen.

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kathy

Posted at 5:02 PM on May 25, 2012  

it actually discusses me how those 2 parents let juliana live because of there own selfish needs. i saw the documentary when she turned 5 yrs old, and had her 29th surgery. it was heart wrentching, poor little juliana was saying no to the surgery just like all the other ones. because she knew it was painful. and the parents did not care because they want her to be normal, juliana doesnt care. we all know juliana will never have a normal life, be married or have children, or even experience love with a man, so who are her parents kidding. my 3 year old saw the show with me and he noticed the difference in her, so how can her mother say that the kids at her school did not notice the difference and that the kids thought she was normal. i think its very selfish of the parents to be putting juliana thru this. i do not believe in abortion, but in extreme cases like this one i believe it should of been an option, and why are they letting there oldest biological daughter dress and have a haricut like a boy. i though it was a boy on the documentary until they said her name. parents do not know what they are doing, they shouldnt be parents at all. when julianas a teenager she will notice the difference in her face, and her parents will not be able to lie to her anymore.,

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mark

Posted at 11:45 PM on May 27, 2012  

Until you have a child with an impairment it would be best if you didn’t comment as to these parent’s choices for their child. Children all the time say “no” to surgeries – they know the IV’s hurt, etc. – so by your logic should we then say that all parents are horrible for having their children get any surgical procedure? Juliana’s surgeries have almost all been necessary to sustain life – hardly selfish on the parts of the parents. If your child needed surgery for something there is no doubt that since you love him the way you do that you would have him undergo it. Please, don’t be so judgemental of these parents’ choices to keep their child alive. And yes – children don’t really notice at that age if another child is different.

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Shae

Posted at 6:22 AM on August 6, 2012  

It is not up to you to decide who should and should not comment. Everyone has the right to express their opinion, even if is differs from your own.

 
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Some jerk

Posted at 10:51 PM on May 28, 2012  

“we all know juliana will never have a normal life, be married or have children, or even experience love with a man, so who are her parents kidding”

How can you see into the future? Do you have a crystal ball?

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Ron

Posted at 4:57 PM on May 29, 2012  

wtf is wrong with you?

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MY NAME IS AARON

Posted at 6:00 PM on May 29, 2012  

I couldn’t get past your first sentence.
It “discusses” you?
HAHAHAHAHAHAHA

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Owen

Posted at 12:36 PM on June 3, 2012  

Her parents are doing the best for julieanna as the outside world can be so cruel

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Jodi

Posted at 8:35 PM on June 6, 2012  

Kathy, please educate yourself before you make another post such as this one. To start, the only thing that showed up in pre-natal scans was a cleft palate, not that this would have swayed her amazing parents. Here is a list of some other people who were born with or have disabilities and or deformities; Albert Einstein, George Washington, Hellen Keller, Stevie Wonder, Beethoven, Walt Disney and Piccaso. Think their parents were selfish too? We have no idea what wonderful things this little girl is going to teach us.

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rose

Posted at 1:29 PM on June 7, 2012  

KATHY shame on you!! god put that little girl on this earth for a reason she wouldnt be alive if he wanted it any other way if u think for one miniute that trying to help her is tourture.. either u dont know anyone who has had a will to live or u think that anyone who is “different” shouldnt live…. and as for there parenting NO ONE IS PERFECT did ur mother ever teach u that??? i feel bad for your kids!! if u have any…. children want to express them selves in there own way u cant tell them no u cant paint ur nails that color or no u have to have long hair….. so u are judging this poor family on your point of view?? meaning u steriotype?? thats not a good thing and people dont bagg on u all the time for being judgemental?? DID U EVER LEARN ANYTHING FROM UR PARENTS!!! did the teach u how to be nice at all??? maybe a little??? im pretty sure that juliana will appreciate the fact that her parents didnt kill her!!! THANK GOD SHE IS NOT YOUR KID!!! she wouldnt have ever had a chance at life…. thats sad… everyone deserves a chance… if anything they deserve to have a happy life…. and if her parents want to give her that that is better then what a lot of other kids have… are u going to say that babys with cleff lipps or that disease where your body dosent grow but you age.. or children with autism…. are you going to say that thoes parents shouldnt have given there child a chance at life?? YOU TRULEY ARE A DARK WOMEN!!! you have NO HEART!! idk how u sleep at night….. that is sad..

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Caroline

Posted at 3:37 AM on July 3, 2012  

I agree. Although Julianas parents are dealing admirably with the terrible situation, I cannot help to think whether we, humans, should decide to make another human being going through these terrible ordeals. Heartbreaking to think that this little girls life will be living from operation to operation.
What happens when the parents cannot take care of her anymore??

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Cathy

Posted at 10:22 AM on May 23, 2012  

Thank you! But, I don’t think those hateful people care about anyone else but themselves!

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Phil

Posted at 11:42 AM on May 22, 2012  

She looks so much better than she did, and good for them to adopt another little girls who needs support and love. Good to see this world isn’t devoid of compassion.

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Cathy

Posted at 10:29 AM on May 23, 2012  

@Phil, EnderCatz, and others who said kind-hearted things about this sweet child! God Bless you!

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EnderCatz

Posted at 1:26 PM on May 21, 2012  

Julliana is a beutiful girl. On the outside and inside but her little sister looks like shes having a heart attack

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Wuzza

Posted at 12:51 AM on May 21, 2012  

I highly doubt that. Your naïveté is astounding.

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