You might recognize Juliana’s story from her Discovery Health Channel documentary. And now, there’s some good news about her progress.
When we first saw Discovery Health Channel‘s documentary on the little girl now known worldwide as the “Girl Born Without A Face,” we were extremely touched and curious about her medical progress. And now, Juliana Wetmore, 8, who suffers from a severe case of Treacher Collins Syndrome — an hereditary disease that causes defects of the face — has some good hope for her future.
Although Juliana has been through countless numbers of surgeries, since she was born in March of 2003 missing 30-40% of the bones in her face, she recently underwent a “big deal” surgery in February that involved doctors taking rib bone and beginning to form cheek bones with it.
“It wasn’t easy for her, as her face swelled to the extent that she couldn’t open her eyes,” her nurse, Jeanne, wrote on Juliana’s webiste. “Even so, she didn’t want to lay around in a hospital bed, so she was home on her third post-op day.”
And although the surgery didn’t change Juliana’s appearance much, it is the first step in the process to give her cheekbones.
“Even though Juliana doesn’t look very different, she apparently feels different,” Jeanne wrote. “She can feel firmness now where there wasn’t any before. She puts her fingers beneath her eyes and says “I love my new cheeks”! So amazing!
Juliana is picutred above with her adopted sister, Danica, who also has Treacher Collins Syndrome.
We are truly affected by her story and can only hope her surgical progress goes well. She is a strong little girl who has a lot of fight with her.